Saturday, July 21, 2007
There are times in which I just feel like getting on the floor and worshipping God for the great things that He does. Our two beautiful daughters just got home from a missions trip to the inner city of Philedelphia. The glow on their faces is worth it's weight in gold, but the joy that overflows when they talk about what they experienced is priceless. They experienced the almight Father in ways they never had before. God is faithful and answered our prayers. They saw His face and experienced His love. And beyond that, they had the opporunity to plant many seeds and even were able to bring some into the Kingdom. Praise God! Here are a few of the pictures from their trip:























Well, last weekend was an emotional weekend for me. Nothing happened, I just felt overwhelmed with life. I really haven't had the ability to recover from our trip. The exhaustion and the demands of being a mother to 3 teenagers, one preteen and 2 toddlers had finally "pushed me over the edge". But, God has blessed me with the most incredible husband in the world and 4 very passionate and loving children (the 2 little ones are too, but they are not very sensitve to Mom's breakdowns). They all patiently took care of mom for a day. It was so wonderful! I guess every now and again, it's ok to admit that life is hard... as long as I remember to go God's feet and rest there!
All that to say that digital scrapbooking is very therapeutic to me. I have spent a few hours at this computer playing with my pictures. Above are the results of my "alone" time.
Wednesday, July 18, 2007
Ri is adjusting so well, it's as if he has always been with us. As we were walking down the road last night, I was watching Elizabeth with him. It seems as if she really enjoys having him, as if he is her best friend. It is very cute to watch her with him. Of course, there are many, many times of fighting and screaming. Often, she leads the play. He follows her and mimicks much of what she does. He isn't able to keep up with her physcially, but boy does he try! As she is running ahead, she will stop and look back to make sure that he is coming. If we are doing anything fun, she almost always makes sure that Ri is around for it. And Ri seems to feel the same about her. They seem to be so good for each other. I praise God for that. I know that He has brought them together!
Elizabeth's EEG was fine. I guess that simply means that the seizures are due to fever. That is a good thing! Hopefully she will outgrow them. I am so thankful for 6 healthy children. Please pray for Emily and Erin this week. They are on a mission trip in the inner city of Philidelphia.
Sunday, July 15, 2007
Wednesday, July 11, 2007
Praise God.. Ri's report
Sometimes I am so in awe of God that it takes my breath away. To my shame, it doesn't happen as often as it should. I tend to take God and all that He has given me for granted. It is in the times of awe that He brings me back to remembering that I should have that awe ALL the time, not just fleeting moments, not just when He has shown me His truths or His faithfulness, not just when things are incredible or even just good, but ALL the time.
Yesterday, I was reminded that God sometimes allows things to happen that just don't make sense. As we were praising God for Ri's incredible report, our precious friends who were expecting twins, were given the news that the little ones were gone. My heart was aching. It was strange for me to experience such joy and such sadness all at the same moment. So as I laid down for bed, I pondered on life. I thought about the things that don't make sense. Good things happen to bad people and bad things happen to good people. There are those who don't live for God, those who hate God, those who could care a less about God... all who seem to never go through tough times. There are those who walk close to God, serve God, love Him with all of their hearts, who sacrifice for Him... who have very tough things happen to them. There does not seem to be a rhyme or reason for what happens to people. And then I was reminded that God I don't need to understand the "whys". I just need to trust Him through every good and bad moment. I shouldn't compare what happens in my life to someone else and ask why. I just need to be in His hands, believing that He has a plan and a purpose. It goes back to the verse that has become my favorite verse in the Bible.
For I know the plans I have for you,' says the Lord, 'plans for well-being and not for trouble, to give you a future and a hope. - Jeremiah 29:11
God is in control and NOTHING catches Him off guard. He will hold His children through every trial and every moment of joy. And as I share my joy, I praise God for His faithfulness to Ri and to us. We met with Dr. Teske, a pediatric cardiologist at Children's Hospital in Columbus. He is considered an excellent doctor. He took a long time sharing with us what Tetrology of Fallot (TOF) really is. He had a diagram of a healthy, normal heart and then drew us a diagram of a TOF kids' heart. It amazes me how God has gifted men and women to be able to open up the chest of a person and repair a heart, especially with all the problems it appears a TOF child has. There are 4 defects to a TOF heart. 1. right ventricular hypertrophy (causes a thickening of the walls of the right ventricle) 2. pulmonary stenosis 3. overriding aorta 4. ventricular septal defect (VSD - a hole in the wall of the ventricle. With Ri, there were actually 5 defects, thus it is actually called pentrology of fallot. His fifth defect involves the left atrium. It is an atrial septal defect.
Dr. Teske was amazed at how wonderful Ri looks. When he would comment on how good he looked, he would just smile and assure us there was no concern about his health. We learned that once a TOF kid is repaired, they rarely ever need another surgery. They may need a procedure done as they get older to help with any narrowing, but rarely any further surgery. We also learned that his heart will never be perfect, no TOF kids heart will be, but it will be as good as a normal kids heart. He has absolutely no restrictions or limitations. His chance of having a heart attack is no different then any of my other children's chances. In fact, he told me if Ri has a heart attack it would be my fault for feeding him wrong and making him overweight or unhealthy :)
Based on the reports given to him from China, he is confident that Ri's surgery went well. We were suppose to have an US down on his heart, but Ri cried for a minute, maybe 2 as she put stickers on his chest and made him lay down. After telling him to stop crying and that all she wanted to do was take a picture, she looked at me and told me she couldn't do this and she would have to talk to the doctor. Then she proceeded to tell the doctor that he was out of control. Needless to say, I was not impressed with this Children's Hospital technician. But despite the lack of an ultrasound picture, Dr. Teske was able to read his chest x-ray report and read an EKG that was done on him. The EKG looked great for a TOF kid. It does not look like a normal heart EKG, but it is considered very normal for a child with TOF repair.
The result? Ri is as normal as any other child. When he has any type of dental work or invasive type procedure with metal, he will need to take antibiotics before hand. (I have to do the same thing since I have MVP). He can be just as active as other children. And we don't have to go back to the cardiologist for a year.
SO, once again, I say praise God. For some reason, God chose to bring this little boy into the world in a different way then most kids. He was born with a very serious defect to his heart. He was abandoned by his parents and forced to live in an orphanage, without a family for 2 1/2 years. He had to undergo open heart surgery and lay in a hospital for 30 days..alone. Why? Does it make sense to me? No! Will it make sense to my son? Probably not. But I know that God held him through it all. God provided the surgery for him. God orchestrated every detail to bring us to him. Maybe had he not been born with this heart defect, he would never have been our son. Only God knows the answers. And so I lean on the truth that the word of God says. God has a plan and a purpose and it is NOT to harm us. One day, Ri will face these same questions. I will not have the answers. But his heavenly Father does. It is our prayer that Ri will walk with the Lord and will find his answers at His feet.
Yesterday, I was reminded that God sometimes allows things to happen that just don't make sense. As we were praising God for Ri's incredible report, our precious friends who were expecting twins, were given the news that the little ones were gone. My heart was aching. It was strange for me to experience such joy and such sadness all at the same moment. So as I laid down for bed, I pondered on life. I thought about the things that don't make sense. Good things happen to bad people and bad things happen to good people. There are those who don't live for God, those who hate God, those who could care a less about God... all who seem to never go through tough times. There are those who walk close to God, serve God, love Him with all of their hearts, who sacrifice for Him... who have very tough things happen to them. There does not seem to be a rhyme or reason for what happens to people. And then I was reminded that God I don't need to understand the "whys". I just need to trust Him through every good and bad moment. I shouldn't compare what happens in my life to someone else and ask why. I just need to be in His hands, believing that He has a plan and a purpose. It goes back to the verse that has become my favorite verse in the Bible.
For I know the plans I have for you,' says the Lord, 'plans for well-being and not for trouble, to give you a future and a hope. - Jeremiah 29:11
God is in control and NOTHING catches Him off guard. He will hold His children through every trial and every moment of joy. And as I share my joy, I praise God for His faithfulness to Ri and to us. We met with Dr. Teske, a pediatric cardiologist at Children's Hospital in Columbus. He is considered an excellent doctor. He took a long time sharing with us what Tetrology of Fallot (TOF) really is. He had a diagram of a healthy, normal heart and then drew us a diagram of a TOF kids' heart. It amazes me how God has gifted men and women to be able to open up the chest of a person and repair a heart, especially with all the problems it appears a TOF child has. There are 4 defects to a TOF heart. 1. right ventricular hypertrophy (causes a thickening of the walls of the right ventricle) 2. pulmonary stenosis 3. overriding aorta 4. ventricular septal defect (VSD - a hole in the wall of the ventricle. With Ri, there were actually 5 defects, thus it is actually called pentrology of fallot. His fifth defect involves the left atrium. It is an atrial septal defect.
Dr. Teske was amazed at how wonderful Ri looks. When he would comment on how good he looked, he would just smile and assure us there was no concern about his health. We learned that once a TOF kid is repaired, they rarely ever need another surgery. They may need a procedure done as they get older to help with any narrowing, but rarely any further surgery. We also learned that his heart will never be perfect, no TOF kids heart will be, but it will be as good as a normal kids heart. He has absolutely no restrictions or limitations. His chance of having a heart attack is no different then any of my other children's chances. In fact, he told me if Ri has a heart attack it would be my fault for feeding him wrong and making him overweight or unhealthy :)
Based on the reports given to him from China, he is confident that Ri's surgery went well. We were suppose to have an US down on his heart, but Ri cried for a minute, maybe 2 as she put stickers on his chest and made him lay down. After telling him to stop crying and that all she wanted to do was take a picture, she looked at me and told me she couldn't do this and she would have to talk to the doctor. Then she proceeded to tell the doctor that he was out of control. Needless to say, I was not impressed with this Children's Hospital technician. But despite the lack of an ultrasound picture, Dr. Teske was able to read his chest x-ray report and read an EKG that was done on him. The EKG looked great for a TOF kid. It does not look like a normal heart EKG, but it is considered very normal for a child with TOF repair.
The result? Ri is as normal as any other child. When he has any type of dental work or invasive type procedure with metal, he will need to take antibiotics before hand. (I have to do the same thing since I have MVP). He can be just as active as other children. And we don't have to go back to the cardiologist for a year.
SO, once again, I say praise God. For some reason, God chose to bring this little boy into the world in a different way then most kids. He was born with a very serious defect to his heart. He was abandoned by his parents and forced to live in an orphanage, without a family for 2 1/2 years. He had to undergo open heart surgery and lay in a hospital for 30 days..alone. Why? Does it make sense to me? No! Will it make sense to my son? Probably not. But I know that God held him through it all. God provided the surgery for him. God orchestrated every detail to bring us to him. Maybe had he not been born with this heart defect, he would never have been our son. Only God knows the answers. And so I lean on the truth that the word of God says. God has a plan and a purpose and it is NOT to harm us. One day, Ri will face these same questions. I will not have the answers. But his heavenly Father does. It is our prayer that Ri will walk with the Lord and will find his answers at His feet.
Tuesday, July 10, 2007
Well, I seem to have slacked off this past week. I guess time has just gotten away from me. So, this morning, I thought that I might catch you up a bit. My good friend mentioned that she read about Elizabeth's EEG but I didn't post much about it. Sorry about that! Yes, she had an EEG done last Monday. We hope to have results this week. We are not expecting anything to show up, but the doctor was pretty insistent that we have one done. For those of you who have no idea what an EEG is, it is a test done on the brain. They are testing her to find out if her seizures truly are as a result of fevers or if there is something else going on. I am not sure if I posted how the test actually went for her, but I think I will share it again even if I did. You see, for me, it was a small miracle. Elizabeth generally freaks out when it comes to some unknowns. In this case, I figured she would freak out at just being in an exam room with things on her head. We were told that she had to be sleep deprived so that she would sleep at least 20 minutes during the test. Ha ha! How do you sleep deprive a 2 year old who has an hour drive??? And then, how on earth will my 2 year old ever sleep in an exam room with things attached to her head and in a papoose!!?????? Boy did I have a challenge ahead of me. And to top it off, I had forgotten her blanket. Ugh.
But, God is so faithful. If ever I saw the hand of God, it was during this exam. I don't mean that lightly in anyway. I am convinced that God gave me the idea to go to COSI a few hours before the exam. I have never thought of it before. So, 20 minutes after it came to my mind, we were out the door. I took the boys and Emily kept Ri for me. We went early enough in the morning so that it wasn't too difficult to keep Elizabeth awake. AND, COSI is just 5 minutes from Children's, so it was easy for me to keep her awake then too. We played hard at COSI. When we got to Children's, Elizabeth showed absolutely no sign of sleepiness. The appointment was at 2:00 which was good, because that is her general nap time. As soon as they called us in, she walked straight back... until the nurse turn to go into the room. IT was then Elizabeth started freezing up. She stopped and looked at me with a pa nick in her eyes. I figured it would be a long 2 hours. A cartoon was playing on the tv, so I distracted her a little. We found out the nurse had Barney, so once the nurse left to get it, I held Elizabeth and kept reassuring her that they would not hurt her. Then I found out she had to be strapped into a papoose. Ugh. There was no way that Elizabeth would let us do that! Well, the time had come to strap her in. Barney was playing. I told Elizabeth to lay down on the bed (papoose). She began to fight me, but I reassured her that I would lay with her. So, I laid right down with her. The nurse decided that she would try the pappoose without strapping down her arms. After some hesitation, Elizabeth laid down and relaxed with my arms laying over top of her and holding her hand. Then came the fun part. The nurse was going to glue 25 or electrodes onto her head. What do you think? Would your 2 year old lay still for that??? I was told that she would have to use a specific glue because of her age. Well, God was so good! Elizabeth was laying so still and not fighting one bit that the nurse decided to try using just the paste instead of the stronger glue. Can you believe it??.... she laid there and allowed the nurse to color on her head, wash each spot and "attach" each electrode to her head? Wow! Then she had to sleep for at least 20 minutes. Yep, you guessed it. She fell right to sleep just as the last electrode was in place. She slept for the 20-30 minutes of testing. Then she had to be woke up for the last bit so that she was awake during that. If any of you do not know, Elizabeth wakes up horrible, even when she is rested. But to give her only 30 minutes of sleep on a sleep deprived day is nuts. She was going to scream like they hadn't heard before. Yep, you guessed it again.... she opened her eyes, looked at me, looked around the room, felt her head, and then just laid still the entire time. She finished watching Barney. Then the nurse removed every wire and even washed her head. Yes, there is no doubt in my mind, it was a God thing. The nurse was amazed. She rarely ever uses the paste on 2 year olds.
So, that is the EEG. I hope to know something this week and will post it when I do. But onto today. Today, Ri has his cardiologist appointment. It has been a long awaited event for me. I will post what we find out either tonight or tomorrow. Please pray for him as he goes through the testing and that the results are good.
For those of you who are prayer warriors, please pray for our good friends. They were in the process of adopting again and discovered that they are expecting.... twins! They actually were expecting triplets, but the third baby did not survive. She is in her first trimester and the lives of the twins are in danger. She is experiencing some complications. Please pray for these precious babies.
Well, I need to begin waking kids up. It is a long day of doctor appointments. Ri and Elizabeth are both doing wonderfully. It is hard for us to believe we have only been home 5 1/2 weeks. It seems like Ri has always been with us.
Tuesday, July 3, 2007
Time seems to be flying by. I can not believe that we have been home for over a month now, yet at the same time it seems as if we have always had Ri. I thought I might take a moment to share with you a little about our little guys personality and where he is in his development.
In the past few weeks he has seen our family doctor, the doctor at the adoption clinic, had blood work done, had chest x-rays for his TB results, and has been evaluated by the Help Me Grow program with our county Health Department. He will see the cardiologist (finally) next week. So far, he checks out wonderfully. He is definitely small so we will be having his weight checked monthly for awhile. But, other then that and his TB test results... he is doing great!
He and Elizabeth are becoming quite the buddies. Elizabeth gets very concerned if Ri is not joining her/us during activities. It is very cute. She is often found helping Ri do something or showing him how to do it by taking his hand or his entire body and forcing him to do something. He has become quite use to her showing him the ropes. In fact, he is now picking up on just about everything she is doing. It is funny to watch him. If I could only get her to speak more clear, he would be speaking sentences! If she says something, he is very quick to repeat it to me too. He cracked me up the other day. I was washing their hair. Both of them hate the water being poured on their heads, so when I turn the water on, Elizabeth always yells "Ri, Ri, Ri". She wants me to do his hair first, hoping not to get any water on hers. Well, I did hers all the while she was yelling "Ri, Ri, Ri". As soon as I started pouring the water on his head, he started yelling "Ri, Ri, Ri". It was just too funny. I don't think he realized that it was his name he was yelling. I think he figured if he yelled it, then I would stop pouring it on his head too.
He is picking up talking much quicker then I ever expected. I figured that since we were told he only said a few words in Chinese and since I have never heard him speak even one word in Chinese, that language may be an issue for him. Well, he says a few words very well and he is beginning to repeat many words. He says "Mommy" very clearly as well as bye-bye (with a very cute wave I might add). He is saying: again, happy, Daddy, Erin, Bami (which is how Elizabeth says Sam) more frequently. He has been caught saying many other words, but doesn't use them. I figure in about a month, he will have Elizabeth's vocabulary down pat. Unfortunately, hers isn't exacting booming yet!
As far as personality, he is just too sweet. He has quite the twinkle in his eyes when he smiles. His giggles makes us all crack up. He loves being tickled and rough housed, though we are suppose to take a little easy on the rough housing until he is checked out by the cardiologist. He sleeps wonderfully; taking a 2-3 hour nap in the afternoon (on schedule - wow...a first in the Miller home!) and sleeps completely through the night! He sleeps in a full size bed and has only fallen out once. He can climb up and down many things, though getting down the stairs is quite intimidating for him and he insists on holding our hands. He is now very brave with our dog, Chuck and he loves the cat. He enjoys seeing all new things, especially outside with his Daddy. He still loves Jacob, though Mommy and Daddy are making it to the top of the list (finally). He enjoys just about any play activity. He can sit for long periods at a time building blocks or playing with stacking cups. I think he enjoys those kinds of things the most. He has discovered coloring and seems to like to scribble things, unfortunately, not all things are paper. :)
He is willing to go to others, though that seems to be slowing down. He is becoming hesitant and sometimes refuses. I think that is a good sign; at least a sign of bonding with us. He LOVES eating, though he is becoming picky about what he eats. He does enjoy meats (something Elizabeth still fights me on). His favorite thing, though, is berries!!!!!
I am finally feeling a little less overwhelmed with all of the kids, more specifically TWO toddlers. I think they are feeling better with each other and even allowing me to give time to both of them. Elizabeth has definitely stopped screaming at my legs when I just look at Ri. She is even allowing me to hold him and love on him anytime I want or most of the time when Ri wants me too. The big clue was a few nights ago when I asked her not to scream when I walked out of the room so that Ri could fall asleep on his own. She just quietly laid their in bed until I came back into the room. I know that that does not sound very exciting to you all... but to me, that was HUGE! Since we brought her home, I have never been able to walk out of the room without her losing it. The moment I even thought of leaving, she would begin screaming and if I actually did... well... terror screams would erupt from her little body! So for her to just lay there and wait was incredible.
Well, my little girl is laying all alone in the other room. I think I will go have some snuggle time before my little boy wakes up.
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